Comments for Hemochromatosis Help

Comment on Iron Rich Foods by TR

TR — Mon, 22 Feb 2010 04:41:49 +0000

I’m vegan which means I do not consume animal flesh and animal products for ethical reasons. There is no need to eat flesh or animal products to be healthy. In fact it is detrimental to one’s health and certainly is not helpful for someone with hemochromatosis.

I went undiagnosed for 43 years but fortunately I do not appear to have any obvious damage. I think the reason I find these condition so easy to control is because I’m vegan. There’s a book called “Becoming Vegan” which is very helpful for those who are interested. I only have to have a few venesections per year. “Becoming Vegan: The Complete Guide to Adopting a Healthy Plant-Based Diet http://bit.ly/GnozK
I would recommend it

Comment on National Hemochromatosis Month by Deb Doss

Deb Doss — Fri, 19 Feb 2010 01:13:47 +0000

Anybody else know May is around the corner ? Please anyone ,why is May so special for HH awareness ,wheres the extra attention links ,anything…….help me find them before more people go undiagnosed as myself for so many years ,there were no links on my family tree…….I am the first……….lets blast May out new resourses ,,,,,,,,,,,,,,

Comment on National Hemochromatosis Month by Deb Doss

Deb Doss — Fri, 19 Feb 2010 01:08:49 +0000

Ok ,this is my first for knowing May is awareness ,where can we the people go to be tested ,any sites posting special testing for the month of May ,why May ?

Comment on Deadly Side Of Iron by Eilee Appleby

Eilee Appleby — Tue, 30 Jun 2009 15:40:05 +0000

Very informative, I agree with Karen (commentin Jan)I’m out of primary care but no one seems to tell you about the problems when your iron level is lower. I have just given another pint after 7 months which was too long my levels were high again and I was feeling depressed, fatiqued and anxious it’s difficult to work as you never now how the day will be. Any advice out there? Thanks.

Comment on Hemochromatosis And Anemia by DocInTheBox

DocInTheBox — Thu, 26 Mar 2009 19:55:03 +0000

Hi! Thanks for your comment/question on my blog. As far as blindness and Hemochromatosis, blindness is not usually a direct consequence of the disease itself. However, diabetes is a common problem in people with Hemochromatosis and diabetes is the leading cause of adult-onset blindness. So, you could say there is a round-about connection to the vision problems in some people.
However, I encourage you to visit your physician to discuss these changes in your vision, as there could be other reasons for the occasional blindness. Good luck, and I hope you stay well.

Comment on Crucial Hemochromatosis Survival Tips by Stephen

Stephen — Sun, 01 Mar 2009 09:37:38 +0000

Hey Pat,

I have hh, and appreciate your honesty and vigilance. Having gone through the gauntlet of doctors visits and diagnoses, I was already up to speed with most of your excellent tips. However, I was happy to find out about the green tea. I have been obsessed with green tea for the past couple of years. I guess it was my body telling me what it needed in a way. Funny how that will work out. The heme and non-heme was great too. I have found in my (and my doctor’s) research that some calciums are far better than others at slowing iron absorption. Specifically Calcium Citrate(49% reduction) and Calcium Phosphate(62% reduction!). Taking supplements before meals is a super idea.

Anyway, thanks for the great links. Keep up the good work. Good luck.

Comment on Effects of Hemochromatosis by tiff

tiff — Sat, 07 Feb 2009 20:08:18 +0000

my husband was 26 years old when diagnosed with hemachromotosis. he has been pretty consisitant about getting phlebotomies since he found out.
just this past week, (6 years after diagnosis), he had been very fatigue for a couple of days, accompanied by a dull headache that would not go away. He passed out and landed himself in the hospital. Ekg’s and echocardiogram results were all normal readings. blood work ups have also come out normal. he is extremely fatigue and still has headache and the drs are puzzled. this week we are going to see a cardiologist for more work up on his heart. he is on a 30 day heart monitor also.
we are very scared and pray we get answers. he can’t even function enough to work.
i hope someone may have a comment to help us.

Comment on Green Tea For HH by Hemochromatosis Detection - Your Transferrin Saturation |

Hemochromatosis Detection - Your Transferrin Saturation | — Thu, 05 Feb 2009 07:28:17 +0000

[...] Green Tea For HH [...]

Comment on Deadly Side Of Iron by Karin Kearney

Karin Kearney — Thu, 15 Jan 2009 01:24:09 +0000

Thank you so much for this website and this information. I cannot THANK YOU enough. I have been unable to get good advice from the doctors I have been seeing. Most of the time I feel I know more about it than they do! Anyone else outside of the medical commmunity I’ve talked to has never heard of this disease unless they’ve had an immediate family member stricken. I am going to read on and educate myself…as they say “the best defense is a good offense”.

Comment on Hemochromatosis Techno-Babble by Jaysa

Jaysa — Mon, 05 Jan 2009 21:08:48 +0000

Interesting. Did you speak to your doctor about why you were misinformed?
I think the Drs offices are kept cold to keep bacteria from growing.